Tuesday, March 6, 2012
He's coming home!
He's getting ready to go back home - my father-in-law, that is. After almost two months of hospitalization and rehabilitation, he's ready to step foot in his own home.
My father-in-law is something of a miracle man in my book. After all that he'd been through, I was ready to say goodbye to him in January. I told my partner that I wouldn't have put a two-cent bet on his life. So many things were working against him.
After abdominal surgery to remove a cancerous tumor, and a whole host of problems afterwards including hiccups that delayed recovery, septic shock, and then shingles, I'm surprised he's living at all.
Then there is this business of his attitude towards the surgery and likely cancerous tumor. He consistently said that he didn't want the surgery - before and after the surgery. In my counseling training, I learned that our thoughts can be critical to recovery.
These were just the problems that took place during the first month when he was hospitalized.
Then he was moved to a nursing home that had available space. This was not his first choice by any means.
Welcome to our patchwork-of-services healthcare system where you really don't get a choice unless you are uber wealthy and have access to the ritzy long-term care communities. In that case, they will hold a bed for you. No, he pretty much has the standard Medicare insurance (as much as he bitches about the government and watches Fox News) and possibly a supplemental policy to help pay his co-pays and deductibles.
Once he was moved to the local nursing home for rehab, things didn't really settle down. After the move late in the day on a Monday, the family returned the next morning. His wife found him moaning in pain.
Now this is a farmer who could suffer pain silently and did so in the hospital, so something was up. He thought he'd been dropped on his bed when moved with a hoyer lift (a sling with a hydraulic lift used to move people who can't transfer from a bed to stand or sit on their own). His shoulder was killing him.
My mother-in-law was beside herself with anguish. Something was wrong. This wasn't like him.
After much ado, it became clear to me that whatever had happened, his thinking wasn't very clear. That didn't mean that he wasn't in pain or hadn't had a hard landing, though. My first thought was that he had a urinary tract infection (UTI).
The problem was that staff assumed that this was his normal behavior (weak, confused, no appetite) and didn't get that this was something to pay attention to. (Read: this is why it is important for families to be involved - only you know your loved-one well enough to know what seems in line with their normal behavior.)
UTI's are fairly common in older adults and particularly those with urinary catheters. His was still in at the time. Yes, he was still on antibiotics. But after testing, the results came back the next day that he had a UTI. So he got another antibiotic to address this strain of infection.
He complained that the night shift sounded like they were partying all night in the facility. Rest was tough to come by.
A long-term care ombudsman was involved in working with the family to find another place. A few days later, one was found that met with the family's approval.
After several weeks of watching this tough and, yet, ever so fragile man struggle with one thing after another, he was moved to the other nursing home for rehabilitation.
Everyone was holding their breath. Would this nursing home be okay or would we be in for more in a series of aftershocks that kept rolling since his cancer shook our world?
It was a good sign when everyone reconvened in father-in-law's room the next day and talked about getting their first good night of sleep in over a month. A collective exhale was felt across the family tree.
Even better has been his progress in doing the repetitious exercises that are strengthening him in targeted ways. After worrying about how his Parkinson's might be made worse from weeks in bed and the infections he kept having to fight, his family now believes that he is stronger and steadier than he has been since before the surgery.
On a physical level, this has been quite a ride. Yet there is something more to add.
The rest of this story is about a mysterious bond called love. His wife and sons participated in daily vigils watching over and attending to their beloved husband and father.
The sons talked about how he had never had the time to really be present to them emotionally while growing up on the farm. If he hadn't been present to them throughout much of their lives emotionally, they were certainly present to him.
His wife of 10 years has her own daughter with whom she is close. The sons and she never really had to deepen their relationships. Not that they weren't cordial. This crisis created an opportunity to knit this family together with him at the center and in ways that seems to be moving them along.
Finally, there was the circle of love in the form of various prayer groups praying for his healing. I've always heard the saying about "God works in mysterious ways." With so many people praying for him and the family, I'm in awe of the outcome in this situation. In fact, I am humbled.
Who would have thought he would have lived through all of this and that he would have come through this stronger? Amazing.
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wonderful to hear some good news.
ReplyDeletekeep taking care of yourself in this same Light